I have been thinking for a long time about writing a book or something to get Luke's story out there for other parents of and people with Moebius to see. So I have found a little bit of time to set this up and over the next couple of days/weeks I should be posting Luke's story here. Stay tuned...
I, too, am a Moebius mom. I wrote a more general blog to help others on their journey. If anyone wants to access it, it's at
ReplyDeletehttp://www.4thosewhofollow.blogspot.com/
I no longer write it since pumpkin keeps me too busy. Still, the info is there for those who might benefit from it.