Sharing my story for the benefit of others. I have benefited from others' stories so I want to share mine.
could you PLEASE look at my sons pictures on facebook? his geneticist has tentatively diagnosed him with moebeus syndrome, but hes not having alot of the other issues that seem to go with it. the main issue he has, other than the major developmental delay is that he is deaf,and cannot smile or frown properly, or move his eyebrows. he CAN move his eyes, but they cross really bad. www.facebook.com/bilingual.illiteratei would appreciate this so much! i am so worried about my little guy.he has a feeding tube because he cant chew properly either :/